Difficulty of Diagnosis

There is no one test or procedure that definitively confirms an ALS diagnosis. Therefore, diagnosis is both lengthy and time-consuming. Symptoms can be attributed to the initial signs of ALS or may indicate another neuromuscular disease, so confirming a diagnosis of this illness often requires a battery of neurological tests and scans. Most of those diseases that mimic the signs of ALS are treatable, so it is important that the correct diagnosis is made.

Treatment

As mentioned earlier, there is no cure or reversal of symptoms for ALS patients. Treatment consists of focusing on the slowing of symptoms for the comfort of the patient. At this point, it may be helpful to have a team of doctors who are trained in various aspects of the complex physical, mental and societal issues revolving around ALS.

Physical therapy is paramount for cardiovascular health, muscle strength and range of motion. Regular exercise and stretching can prevent pain and keep muscles functioning longer. Speech therapy, occupational therapy, nutritional, psychological and social support is typically prescribed for the ALS patient.

Some Strategies for Those with ALS

Upon an ALS diagnosis, you’ll probably experience a “down” time when you feel depressed and sad. This is the time for you and your family to grieve, and it's quite normal when given significantly bad news. Join a support group and make decisions about your future care. And most of all, remain hopeful. As famous Yankee first baseman, Lou Gehrig, said upon his retirement from baseball because of ALS, “I might have been given a bad break, but I’ve got an awful lot to live for.” Consider that ALS is a part of your life -- but not your entire life. That’s the message Gehrig courageously carried throughout his illness.